We were proud to be present for the naming of the Zayed Centre for Research into Rare Disease in Children at Great Ormond Street Hospital.
The Stanton Williams-designed building will be home to a purpose-built centre dedicated to paediatric research into rare diseases. Rare diseases consist of around 6, 000 known conditions, such as childhood cancers, cystic fibrosis and muscular dystrophy. As a group, rare diseases will affect one in 17 at some point in their lives representing a considerable international health burden. Seventy-five percent of rare diseases affect children and nearly one-third who are diagnosed will die before their fifth birthday.
Due to open in 2018, the Zayed Centre for Research will provide a unique opportunity to tackle some of the most challenging scientific questions, enabling scientists and clinicians to more accurately diagnose, treat and cure children and young people with rare diseases.
The name was announced at a celebration at Coram's Fields in Bloomsbury, London opposite the site of the building. The event was attended by dozens of young patients and celebrated the important milestone through arts and craft and cultural activities.
Construction of the Zayed Centre for Research into Rare Disease in Children will commence in January 2016.